Wednesday, March 17, 2010

First post

Starting a blog is new to me. I guess I'll start with our story. This blog is about our youngest daughter Lilly Elizabeth who was diagnosed with anencephaly at 21 1/2 weeks in utero. I'm still dealing with the loss of Lilly so its going to take me awhile to get this blog up and running.

Lilly was born to us on February 22, 2010 at 3:32pm via c-section. Weighing in at 5lbs 3oz and measuring 17inches. Doctors said Lilly would live 2 hours to one day. Lilly went above and beyond that. Lilly gave us SIX days, FIVE hours, and 30 minutes. Lilly Elizabeth passed away February 28, 2010 at 9:02pm in her daddy's arms. Lilly amazed the doctors as well as everyone who met her including her parents. She met so many people in her time here on earth. Lilly was held by many and loved by many. She loved in return as well. She could do lots of unexpected things doctors tell parents babies with anencephaly won't do; what most newborns do. I hope to get her story across in more detail as time progresses. This blog is a work in progress so please be patient.


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